Chantele’s Story

Chantele’s Story

Chantele is 46 years old and found out that she had intestinal malrotation at age 40 during an emergency room visit for abdominal pain. She was told that it was ‘no big deal and it wasn’t the cause of my pain.’ Although she wasn’t told what the cause was. As with many...
Nash’s Story

Nash’s Story

Sydni had a completely normal pregnancy but at her 20-week anatomy scan a concerning black mass was seen in her son’s abdomen. The doctors were unsure what this was and said to wait and run tests after birth. Nash was born at 35 weeks, with a distended abdomen but was...
Koren’s Story

Koren’s Story

Hi everyone. My name is Koren. I am 24 years old and on Nov 7th 2023 I had a life changing diagnosis and surgery. For the past few years I have had increasing amounts of abdominal pain, fullness after eating, bloody stools, urgency etc. For awhile, doctors assumed it...
Charlie’s Story

Charlie’s Story

Charlie was the youngest of 6 children. He was born 2 weeks early and weighed a decent 8lbs 15oz. Charlie had a bit of a pot belly as a baby and would spit up his milk. He was fed on formula and his mother changed to different types as he didn’t seem to tolerate any....
Baylor’s Story

Baylor’s Story

Baylor’s story begins when a mass in her abdomen was found at her mother’s routine anatomy scan Further testing fell short, the doctors couldn’t identify where the mass originated but they assumed it was a benign ovarian cyst. Over time the cyst began to grow. At 39...
Camden’s Story

Camden’s Story

Camden was born on March 6, 2015. Camden was delivered by cesarean section at 35-weeks due to his mother’s sudden and severe development of HELLP syndrome (Hemolysis, Elevated Liver enzymes and Low Platelets), a life-threatening complication of pregnancy. Camden was...